Announcement Details

Rare Disease Day 2025 - " More than you can imagine ."

Feb 28 2025


Dear IADVL Members

Greetings!


Theme for Rare Disease Day 2025 - " More than you can imagine ."

Over 300 million people worldwide are living with a rare disease - 72% of it is genetic in nature. Rare Disease Day, observed on the last day of February each year, is a globally coordinated movement on rare diseases, working towards equity and solidarity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease.

The National Rare Disease Policy 2021 is an initiative by the Government of India to provide financial help for the management of such rare diseases.

ADVL Cutaneous Rare Disease (I-CuReD) Registry in an ongoing initiative by Special Interest Group (SIG) Pediatric Dermatology under the aegis of IADVL EC & Academy to bring together the plethora of dermatological rare diseases under one platform for strengthening their management and policy making in India."

IADVL members can use this Banner/Flash Card to observe the “Rare Disease Day 2025” at their Departments/Clinics.

Best wishes
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